Monday, June 15, 2009

A bit of an update about why I haven't been on


A picture of my younger twin brothers- Jay and Alex from a couple yrs ago




I'm sorry that it has taken me such a long time in writing on here but my life has been kind of upside down lately. One of my younger brothers, Jay was taken to the hospital after a biopsy in which we found out that he had an infection and a rejection with his kidney. It all started on Thursday and finally after the long ordeal, he could go home. He still is dealing with the infection and the rejection but he is doing so much better. His spirits are up and he is acting like his normal self except for being tired. With Jay being in the hospital, I had to take care of Alex(Jay's twin) and I had to make sure to give him his necessary medicines. Every day, I would have to give him, his medicine at 3am, 9am, 3pm, and 9pm. I also had to give him eyedrops, which was so weird because I've never done it before. So I was very tired and busy from taking care of him. I'm sure you are wondering what is going on with them, so let me explain to you all. They have a disease called Cystinosis, that effects their entire body. They both have had kidney transplants and they have had many hospital visits. Jay has been in the hospital twice this year while the last time Alex was in the hospital was a couple of years ago. They are going to be 14 in July but even though they go through so much every day, they are completely normal kids. I know I rarely talk about them but I didn't want people to think that I was using them in order to get more people to read my blog. I'm not that type of person and I would never put them in that situation. My life is almost entirely dedicated to them and I would never try to hurt them in anyway. Since I was about 14, My Mom and I have been taking care of them and I wouldn't trade it for the world. So if I'm not on for a few days, it's because I'm taking care of them. The reason I wanted to write about them now is to give you an understanding about them. So by tomorrow, I should have the Old Hollywood Dating Game up, I'm really sorry for not posting it yet but with what has been going on, I haven't had the time. If you have any questions about them or the disease they are battling, you can email me or go to www.cystinosis.org for more information. Thanks for reading this, I greatly appreciate you it. I hope you all have a splendid day and be ready for the next blog post!

7 comments:

Gingeyginge said...

They Know their blessed in having a sister like you!

Zach said...

Send Jay my well wishes. I'll keep him in my thoughts for a speedy recovery to be back to the swing of things in no time.

Millie said...

Wow, you're such a good sister! They are quite lucky!

I hope Jay feels better soon!

Kate Gabrielle said...

I hope your brother gets well soon-- you're such a great sister!

Meredith said...

your brothers have a wonderful sister, and i hope jay feels better soon!

sneakysnoo11 said...

You are a wondeful sister, they are lucky to have you, I hope Jay recovers soon. My thoughts and prayers are with you xx

Casey said...

Wow, Nicole. You are such a strong person. You and your Mom have been called for a special job in life. I'm proud to know an amazing person like you!

I'm sure Jay will get well soon with such a caring sister at his side. :)